Genetic Alliance UK
Long-term Conditions · Charity · National service
Genetic Alliance UK supports people with genetic, rare and undiagnosed conditions via an information line, SWAN UK and free guides.
Genetic Alliance UK is the national alliance of more than 220 charities and support groups working to improve the lives of around 3.5 million people in the UK living with genetic, rare and undiagnosed conditions. It runs Rare Disease UK, SWAN UK (for undiagnosed conditions), Rare Disease Day and free downloadable Rare Resources guides for newly diagnosed and undiagnosed families. Contact 0300 124 0441 (Mon-Fri 9am-5pm) or contactus@geneticalliance.org.uk for information and signposting.
Contact
Phone: 0300 124 0441
Website: https://geneticalliance.org.uk/
Email: contactus@geneticalliance.org.uk
Address: 3rd Floor, 86-90 Paul Street, London, EC2A 4NE
Opening hours: Mon-Fri 9am-5pm
Who it's for
Who they help: Patients, families, carers and professionals.
Eligibility: People living with or affected by genetic, rare or undiagnosed conditions.
Not suitable for: Information service refer to condition-specific member charity for specialist support.
Information last verified June 2026. Printed from https://www.socialprescriber.co.uk/charities/genetic-alliance-uk